Bastion Lighting Colours Blue and Yellow: MPS (Mucopolysaccharide and Related Diseases) Awareness Day
Mucopolysaccharidoses are rare genetic disorder affecting 1 in 25,000 Canadians, most of whom are children. The Canadian Society for Mucopolysaccharide and Related Diseases Inc. (The Canadian MPS Society), founded in 1984, serves all Canadians affected by MPS and related diseases through support, education, advocacy and by advancing research. We are the only national non-profit organization in Canada, supporting Canadians affected by this disease. Quite often, we are the first point of contact for external support outside treating physicians and caregivers. We strive to empower patients and families with educational materials, support networks, financial assistance and comfort in knowing that they are not alone in their journey and that we are here to help, in every way that we can.
By shining the lights of hope, we would like to get the attention of Canadians towards this rare genetic condition and give voice for those affected.